Australasian Multiple Sclerosis Network of Care Multiple Sclerosis Network of Care Australia
A Voice for People Affected by MS
About the Network

CCSVI web site

 
A B C D E F G H I J K L M N O P Q R S T U V W X-Y Z
     
Contact the Network
Advanced Research
 
About this Road Map
  About the Network
  Site Map
  Topic Index
 Case Study
 
About Multiple Sclerosis
  What is MS?
  Vascular Issues
  Living with MS
  Quality of Life
  Charter of Rights
  Issues & Needs
  Networking
  Regional Support
  Service Guidelines
  Care Standards
 
CCSVI and MS
  What is CCSVI?
  Parliament's Role
  Petition
  Dispelling the Myths
  Talking Points
  CCSVI Face Book
  Innovation  & CCSVI
  Life Quality & CCSVI
  Adapting to Change
  A Right to be Tested
  The Early Adopters
  Patients Perspective
  Treatment & Contacts
 
Support Services
  Carers & Respite
  Exercise
  Home Care
  Income Support
  Rehabilitation
  Transport/Mobility
Networking
 
Australia
  Demographics
  Networking
  Network of Care
  CCSVI Australia
 
NSW
 Demographics
 Networking
 Bega
 Northern Rivers
 
ACT
 Demographics
 Networking
 Canberra
 
Victoria
 Demographics
 Networking
 People with MS  
 
Queensland
  Demographics
 Networking
 Gold Coast    
 Toowoomba
 Townsville
 
South Australia
 Demographics
 Networking
 
West Australia
 Demographics
 Networking
 
 Tasmania
 Demographics
 Networking
 
Case Study
  Horizon Group
 Discussion Archive
  Pathways Project
  Video Archive

  


AN IMPORTANT SOURCE OF INFORMATION

The  Multiple Sclerosis Network of Care Australia was established in 2003 (originally known as the Horizon Group) under the guidance of the Multiple Sclerosis Society of NSW with the vision of ensuring that people affected by MS gain a respected, evidence based and ‘patient-centred’ seat at the table in all matters relating to ways in which services affecting their well being are developed, delivered and evaluated.  Around 2006 access to the Network’s emerging research databases (at that time hosted by NSW Health) and associated networking became nationally available. Two of Australia's peak health advisory bodies, the National Health and Medical Research Council and HealthPACT have since acknowledged the importance of the Network as a source of information for individuals living with MS and their families.

 
Sharing Experiences The Network is an unincorporated, not-for-profit, research based voluntary body.  It draws its direction and expertise from the diverse knowledge and skills base voluntarily provided by the MS community and their colleagues through around 400 reference sites, including social media, across Australia with global linkages. It has no affiliations with pharmaceutical organisations and does not engage in fund raising. Its role is educational and supportive.
NETWORK MEMBERSHIP

Members include the MS community, health care professionals, service providers, case managers, researchers, parliamentary representatives and members of MS organisations. Fundamental to our vision is the objective of increasing access by people with Multiple Sclerosis to services which improve Quality of Life perceptions by highlighting approaches to patient-centred care. Implicit in this process is that the 'voice of people' affected by MS be reflected in the ways in which services affecting their well being are developed, delivered and evaluated.

 
   

"Patient-centred care is an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among healthcare providers, patients, and families - it is the right thing to do"
Australian Commission on Safety and Health Care


 
BECOMING INVOLVED
   
Network of Care Participation in the Network's decision making processes is available to all with an interest in MS irrespective of where they reside. Participants receive periodic e-mail updates on MS related issues to which feedback and suggestions are encouraged. There are several hundred people and organisations, in all Australian States, New Zealand and elsewhere across the globe, who participate in this process. There is no charge and e-mail details are strictly confidential.  Send an e-mail to registration@msnetwork.org if you would like to participate in this process.
   
KEY RESULT AREAS
Via the Road Map to Multiple Sclerosis Support Services the Network's key result areas are:
 
* Promoting awareness about the benefits of patient-centred approaches to MS care
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Providing feedback to service providers, agencies, parliamentary representatives and MS organisations, about ways to improve the well being of people with MS

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Encouraging the MS community, including service providers, to contribute their experiences, expertise and ideas to the implementation of improved approaches to patient-centred MS care

* Highlighting the importance of ensuring that the voices of people affected by MS are properly heard and respected in all matters affecting their well being
 
ROAD MAP TO MULTIPLE SCLEROSIS SUPPORT SERVICES
The Road Map represents a collaborative approach to knowledge sharing.
 
The vast majority of topics have been identified by members of the MS community in Australia. Not all topics are necessarily MS specific but most have relevance to approaches to enhancing Quality of Life perceptions when living with MS. In circumstances where services are not generally available, or fall below the expectations, it aims to provide an overview (by way of facts sheets) of what may be needed. Not all aspects apply universally as needs vary according to disability level and personal circumstances. While some of the Road Map references may relate to specific localities they invariably typify the types of support more broadly available. Access the Road Map
HorizonsSCAN - A WEALTH OF PATIENT CENTRED, EVIDENCE BASED, INFORMATION
The Road Map is underpinned by the Network's Australian MS specific search engine (HorizonsSCAN) that, on a daily basis, dynamically abstracts and prioritises information from a myriad of highly regarded MS reference points in Australia and across the globe. Underpinned by leading edge search engine and database technology HorizonsSCAN brings together and prioritises a wealth of evidence based, patient–centred information. What makes it different is that all of the parameters by which information is analysed and subsequently displayed are patient-centred  - reflecting ongoing feedback from Australians with MS since 2003. A great resource for Australian families living with MS, service providers, researchers, policy advisors and parliamentary representatives.   - Access the advanced research option  
 
BREAKING NEWS
Our News in Brief reflects the 'collective voice' of an energetic cross section of the Australian MS Community. Research, issue identification and feedback are the hallmarks of this community. Emphasis is placed on issues that have the potential to enhance individual quality of life perceptions in an Australasian environment. Check out our latest News in Brief.
 
 
 
 
 
 

 

 

 

 

Facts Sheet RM3000MS
Road Map Reference
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